
This week has been exceptionally quiet, but I think I needed it! I’m still recovering from our recent trip to Sweden and our three days in London, both of which were pretty full-on, especially given the less-than-ideal weather (in London’s case).
The only things I’ve really had on this week have been my usual visits from Sam, who helps me two mornings a week. We’ve managed plenty of cooking and a few little errands, including filling the car with diesel.
Oh my goodness, when did diesel become so expensive? Thankfully, I don’t need to fill my car very often, but when I do, I always fill it completely (70 litres). That’s always at least £100!
On Wednesday, my lovely sister Yvette came to work for me for the day, and we continued with what I’ve christened Project Garage.
This involves sorting through the contents of our extremely cluttered garage, trying to create some semblance of order. We’re grouping things that belong together, finding suitable homes for items we don’t need to access regularly, and making sure the things I or others need frequently are visible and easy to reach. We’ve also been giving away items we don’t need on Facebook Marketplace.
Yvette has done a remarkable job in just two sessions, although I suspect we still have a few more to go before we reach garage perfection!
Of course, plenty still needs to be stored in there, including no fewer than four wheelchairs!
Which brings me neatly to something else. I’ve decided to sell one of my powered wheelchairs.
It was, unfortunately, a rather expensive mistake when I bought it two years ago. It’s a lovely-looking wheelchair and performs brilliantly on gravel, but that’s about where its advantages end!
When it comes to getting into buildings or sitting comfortably at dining tables, it simply doesn’t work for me.
So, reluctantly, I’ve decided it’s time to let it go. I’ll probably be lucky to get back 50% of what I paid, but at least selling it will free up a substantial amount of space in the garage.
Growing older with Thalidomide
On three mornings this week, I’ve also been enjoying watching a live stream of a major international conference for Thalidomiders, being held in the Netherlands.
More than 400 people have attended, and although watching online isn’t quite the same as being there, I’ve found the presentations fascinating.
Much of the conference has focused on the challenges of growing older with the effects of Thalidomide, as well as the work being done by Thalidomide organisations worldwide, including those in Sweden, Japan, Germany, Ireland and the UK.
Some particularly interesting subjects have included the increasing prevalence of falls as we age, planning for surgery and post-operative recovery, and the challenges of needing additional support after years of managing independently.
Participants also duscussed what happens when someone has always relied on support from their partner, only to find that their partner is getting older too and may suddenly need care themselves. It’s something that perhaps none of us gave much thought to when we were younger, but which becomes increasingly relevant as the years go by.
It’s been lovely spotting some familiar faces on stage, and part of me wishes I’d been there in person. However, I’m also quite happy to have been able to dip in and out from the comfort of home!
I suspect the evenings involved plenty of socialising, making for some very long days, and I’m not sure I’d have had the energy for all of that at the moment.
The conference venue certainly looked stunning. It was held in Egmond aan Zee, on the Dutch coast, right beside a glorious sandy beach.
Perhaps another time I’ll make it there in person, but for now I’ve been very grateful for the opportunity to watch remotely and benefit from the knowledge and experiences being shared.
Autumn, winter and comfort food
I have to say, I’m rather enjoying the arrival of the colder months.
Of course, I’m sad to see the sunshine and the lovely weather we’ve enjoyed this year disappearing, but there’s something I really love about hunkering down for autumn and winter.
I absolutely love winter cooking.
Recently, I’ve been enjoying cauliflower cheese, mashed potatoes and one of my all-time favourite vegetable combinations, mashed swede and carrot.
Not only is it delicious, but it’s full of fibre and relatively low in calories. I often use it to bulk out my meals instead of having larger portions of more calorie-dense carbohydrates.
I’ve also been making apple crumble with Sam’s help, using my own rather delicious flapjack-style topping.
Instead of the traditional method of rubbing butter into flour, which is impossible for me, I’ve developed an easier way to make it.
I combine Demerara sugar, spelt flour, porridge oats, chopped pecans and macadamia nuts in a bowl.
In a glass measuring jug, I microwave some butter, add golden syrup, then tip in the dry ingredients. A quick mix with a knife, and the topping is ready to sprinkle over the apples. Well, stewed cooking apples, a few added sultanas and a generous sprinkling of cinnamon. No need to add any sugar – the cinnamon and sultanas balance the tartness of the apples.
It’s so much easier, and the result is a wonderfully crunchy, nutty topping that’s more like flapjack than traditional crumble.
I reckon it’s probably a little healthier too, although I’m not pretending that butter, syrup and nuts are calorie-free! But it’s certainly delicious, and I much prefer it to a conventional crumble topping.
Nutty Flapjack Crumble Topping – 179 calories per portion (fruit base not included)
Makes 6 portions | Preparation: 10 minutes | Baking: 25–35 minutes
A deliciously crunchy, buttery crumble topping packed with oats, spelt flour and chopped nuts. It’s more like a flapjack than a traditional crumble, and it’s incredibly easy to make.
Best of all, no rubbing butter into flour! This is my adaptation of a traditional crumble topping, which makes it much easier for me to prepare.
Ingredients
- 75g rolled porridge oats
- 50g wholemeal spelt flour
- 15g pecan nuts, roughly chopped
- 15g macadamia nuts, roughly chopped
- 30g Demerara sugar
- 40g salted butter
- 40g golden syrup
Method
- Preheat your oven to 180°C (160°C fan).
- In a large measuring jug or mixing bowl, combine the porridge oats, spelt flour, chopped pecans, chopped macadamia nuts and Demerara sugar.
- Place the butter in a separate microwave-safe jug and heat gently until melted.
- Add the golden syrup to the melted butter and stir until combined.
- Tip the dry ingredients into the butter and syrup mixture.
- Using a table knife, mix everything together until all the dry ingredients are coated. The mixture should be slightly sticky and crumbly.
- Sprinkle the topping evenly over your prepared fruit, without pressing it down too firmly.
- Bake for approximately 25–35 minutes, until the topping is golden brown and crisp and the fruit is bubbling underneath.
- Allow to stand for a few minutes before serving.
My tips
I particularly love this topping over stewed Bramley cooking apples, sultanas and a generous sprinkling of cinnamon – but it would also work beautifully with pears, plums or a mixture of apples and berries.
The combination of oats, nuts and golden syrup creates a lovely flapjack-like texture, with a satisfying crunch.
It’s also much easier to make than a traditional crumble because you don’t need to rub cold butter into flour. Simply mix the dry ingredients, melt the butter, add the syrup and combine!
The oats, nuts and wholemeal spelt flour provide fibre and some useful nutrients, although the butter, sugar and syrup mean it’s still very much a treat.
You can also cook this topping in the airfryer. Bake setting, 160 degrees, 9-10 minutes until golden.
Delicious served warm with custard, Greek yoghurt or a little ice cream!
Mounjaro maintenance
My weight is stable, and I’m still finding that my 7.5 mg dose of Mounjaro suits me well.
Occasionally, I experience a very slight feeling of nausea, although I’m not even sure that’s the right description. Perhaps it’s hunger? Who knows!
Whatever it is, I’ve found that having a big drink of squash seems to settle it almost immediately, so it’s certainly not causing me any problems.
I’m pleased that things are continuing to feel stable, and I’m very happy with how maintenance is going.
And on that note, let’s get on to this week’s weight report!
This week’s weigh-in:
Weight this week: 56.05kg (8 st 11.6lbs)
Weight last week: 55.75 kg (8 stone 11.6 lbs)
Weekly gain: 0.3 kg (10.6 oz)
100% – 8 months, 20 days in weight maintenance range (54 – 57kg or 8 st 7 lb – 8 st 13 lbs)





Well, it’s certainly been a busy week!
Another quiet week. Again, I still don’t feel 100%. Whatever this virus is, I continue to feel exhausted with even minimal exertion. But life goes on. The good thing is that I’ve been sleeping well at night.
My talk was all about my experience of volunteering. Unfortunately, my slot coincided with a choir performing elsewhere, so my audience was just four people! Nevertheless, the talk went down well, and I really didn’t mind popping into town to do something that required very little effort from me.


This will be a very short blog post, as I’m currently travelling in Copenhagen and Helsingborg, Sweden. I thought it would be useful just to touch base, though, in case you are eagerly anticipating my usual weekly blog post. I wouldn’t want to let you down!


The week started off looking rather frantic, with visitors planned for three days running. However, for completely different reasons, the first two visits were postponed. And I have to admit, I was actually quite pleased!
I think she enjoyed herself nonetheless, and actually having a smaller group worked rather well because we could all sit around one table and hear what everyone else was saying.
My week began with a jolt. I’ve spent hours recently helping a wheelchair-using friend who is visiting London from Australia in October. She’ll be spending 12 nights in the capital and asked me to help her find a good accessible hotel in a convenient location from which to explore London.



If I had to talk about the things that contribute to my own sense of wellbeing and good mental health, being involved with my local community would definitely be right up there. Working alongside other people to make improvements, particularly when you can actually stand back afterwards and immediately see what you’ve achieved together, is enormously satisfying.