Cakes, Steaks, Liquorice and the Great Fourth-Floor Flush!

I’m back from my travels, and apologies for the slight delay in getting this post to you. I’d been really clever – or so I thought – and tried to get ahead of myself by scheduling a blog post to upload automatically while I was away. Unfortunately, I put the wrong date in!

Anyway, I had a super time in Copenhagen and Helsingborg in Sweden, which I’ll tell you a bit more about in a moment.

Since getting home, things have been rather busy. My partner Mike headed off to Turkey for a week, and then my sister and her husband arrived to stay with me for three nights.

Her visit had originally been planned around what we usually do when she comes to stay. She lives about two and a half to three hours’ drive away, so we normally make the most of our time together with lots of days out.

This time, however, things didn’t quite go to plan. She needed to empty a rental property ready for sale, and the deadline happened to coincide with her visit. So instead of enjoying lots of days out, we spent two days working hard clearing furniture and household items from the house.

I tasked myself with getting everything to the local recycling centre — six trips in all, three each day! My car would be loaded up, I’d drive to the recycling centre, queue, offload everything, drive back and have the car filled up all over again. Then off I’d go for another round.

As if that wasn’t enough, I also managed to come down with a bit of a cold. I was feeling decidedly under par, lacking in energy and generally not particularly great. It also affected my sleep, so I wasn’t getting a good night’s rest either — just when I could really have done with one!

We had an amazing time in Copenhagen, where we stayed for one night and spent the following morning exploring, visiting food halls and the Round Tower, which,  having been built in 1642, was surprisingly very accessible for my powered wheelchair!

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The following afternoon, we took the one-and-a-half-hour train journey to Helsingborg, our next destination. Helsingborg is a city on the western coast of Sweden, overlooking the narrow stretch of water separating Sweden from its very close neighbour, Denmark.

My friend (Tina) was determined that we should see as much as possible of the beautiful area in which she lives – and there was certainly plenty to see.

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The weather was definitely on our side. We had very little rain and plenty of sunshine, although being that bit further north, it was slightly cooler than we were used to back home in southern England with an added fresh sea breeze.

Helsingborg was just lovely, with a wonderful mix of culture and history, beautiful buildings and gardens to explore. Despite it being September, there was still plenty of colour around, including some gorgeous displays of roses and dahlias.

One thing that fascinated us was the Swedish enthusiasm for cold-water swimming. And when I say cold, I mean cold! I felt chilly enough standing beside the sea, never mind actually getting into it.

Helsingborg has a long tradition of kallbad, or cold bathing, with traditional bathhouses built out over the water. People warm themselves in the sauna and then walk down steps straight into the sea for a swim or a quick dip, before heading back into the warmth of the sauna.

And modesty doesn’t necessarily come into it either! We actually saw people swimming completely naked at one of the kallbads in Helsingborg – including older swimmers who seemed entirely untroubled by either the cold water or the lack of clothing.

Apparently, alternating between a hot sauna and a freezing dip in the sea is considered wonderfully invigorating.

I was quite happy to take their word for it and observe this particular Swedish tradition from a safe distance — fully clothed!

We also got to visit my friend’s apartment, where I finally met her 17-year-old cat in person! She’s a familiar face because she often comes to say “hello” when we’re chatting on video calls, so it was rather nice to meet her properly at last.

Our hotel was excellent, apart from one small snag, which I’ll come to in a moment! All of our travelling was actually very straightforward, but you know how it is – travelling takes it out of you. There’s all the hanging around at airports and navigating unfamiliar train stations, and when you’re reliant on lifts and travelling with a wheelchair, there’s always that extra layer of planning (and anxiety) involved. Accessibility was generally very good, although not entirely without its problems.

And then there was our hotel.  Our hotel was perfect in almost every way. It was only about a five-minute walk from Helsingborg’s main train station and overlooked the sea and the ferry terminal.

Ferries run regularly across the narrow stretch of water between Helsingborg and Helsingør in Denmark, with the crossing taking only about 20 minutes. We made the trip ourselves during our stay, which felt rather novel – popping over to another country for a few hours!

There was, however, one rather memorable incident at the hotel.

All of the toilets operated on a vacuum system, rather like those on an aeroplane. Press the button and, with an almighty WHOOSH, everything disappears at great force – and with a noise that certainly doesn’t go unnoticed!

When the toilets on our floor suddenly stopped flushing, it was fairly obvious that something had gone wrong. Thankfully, they could still be used, but we had to wait until the following morning for the problem to be fixed.

And that’s when things became rather amusing. Presumably, everyone on the fourth floor had been waiting to test whether their toilet was working again because, once the system sprang back into life, there seemed to be an extraordinary succession of loud WHOOSHES coming from rooms all around us.

And so it became known as The Great Fourth-Floor Flush of 2026.

Thankfully, normal service had resumed – although for a short while it sounded as though the entire fourth floor was being sucked out to sea!

Thankfully, that was the end of our plumbing excitement and the toilets behaved themselves perfectly well for the rest of our stay!

One thing that really stood out was how helpful people were, both in Copenhagen and Sweden. Of course, it helps enormously that so many people speak excellent English, but we found that people were only too willing to help if they saw us struggling to find somewhere or work out how to do something.

Travelling with a wheelchair in an unfamiliar place can sometimes add an extra layer of complication, particularly when you’re trying to find an accessible route, a lift or the right way onto public transport. Several times, people simply noticed that we might need a hand and offered to help without us even having to ask.

Those little acts of kindness make such a difference when you’re travelling – and they certainly added to our enjoyment of the trip.

In terms of Mounjaro, I deliberately spaced out my injections so that I didn’t have to take my pen with me to Sweden. And while I was away, I certainly indulged!

Since coming home, I’ve taken a 7.5mg injection and I’m really pleased to be experiencing the kind of appetite suppression I had when I was taking Mounjaro before. My weight chart has started to respond accordingly.

That’s not to say I didn’t come back from Scandinavia carrying a few extra kilos! But I’ve largely ignored that, got straight back on track and, as I write this, I’m now only about half a kilo heavier than I was before I went away. I’m very confident that will quickly disappear.

And actually, I can live with half a kilo. I thoroughly enjoyed myself and ate things I wouldn’t normally eat at home.  Breakfast for one, as the breakfast was included in our hotel package.  Then there were cakes, some lovely steaks and plenty of liquorice, which the Scandinavians seem to absolutely love – so do I!

For me, that’s what maintenance has to be about. I don’t want to go away on holiday worrying about every mouthful or feeling guilty because I’ve enjoyed something different. I enjoyed the food, enjoyed the holiday, enjoyed the company of Tina and her PA,  came home a little heavier but simply got back to my usual routine. No panic, no guilt – just back on track.

Weight this week: 55.5kg (8 stone 9¼lbs)
Weight September 12th: 55kg (8 stone 10¼lbs)

Weekly loss/gain: +0.5kg (+1lb)
100% – 7 months 17 days in weight maintenance range (54 – 57kg or 8st 7lb – 8st 13lbs)

Getting Ahead Before Getting Away

This will be a very short blog post, as I’m currently travelling in Copenhagen and Helsingborg, Sweden. I thought it would be useful just to touch base, though, in case you are eagerly anticipating my usual weekly blog post. I wouldn’t want to let you down!

So, how has this week been? Well, mostly I’ve been trying to get way ahead with life admin because I know that once we get back to the UK in a week’s time, I’ll hit the ground running.

Some of the things I’ve been trying to sort out this week include arranging cover for the live-in carer who supports my mum while her usual carer takes some breaks at the end of the month and over Christmas, organising who is going to feed our cats and our fox while we’re away, and putting together an itinerary for a friend from Australia who is visiting next month and spending ten days in London.

We’re planning to get together with her while she’s here, and, as well as helping with hotel reservations, I’ve been sorting out tickets for a London theatre show – Matilda the Musical.

She was also extremely excited when we spoke last week to share news that Leo Sayer is doing a UK tour while she’s here. She must be his number one fan and has attended every single one of his tours in recent years. I’m not sure how many that is, as I’m not a huge fan myself, but she always seems to end up meeting the man himself!

Naturally, she couldn’t pass up the opportunity to see him while she’s in the UK. The closest he’s getting to us is Basingstoke, which is quite handy, as Reading is roughly halfway between London and Basingstoke. It also means she’ll have the opportunity to drop in and visit my home in Reading.

I should probably mention that this friend is also a thalidomider, and I can’t help being impressed by the fact that she is travelling halfway around the world. She has very shortened arms and feet where her legs would normally be, and is a full-time wheelchair user, but remains incredibly independent and active. Goodness knows how she manages that huge long-haul flight. It isn’t something I would particularly want to do!

She’s stopping off in London on her way to the big international thalidomide congress taking place in the Netherlands in October.

I can’t remember whether I’ve mentioned the event before, but I’ve chosen not to go. I think I would find it rather overwhelming being among so many people, and I think I made the right call. The latest numbers, I believe, are around 480 people attending, although that will, of course, include carers, family members and others.

These days, I prefer doing things in smaller groups, where there’s more opportunity for in-depth, meaningful conversations. However, I completely understand why thalidomiders who don’t have many opportunities to meet others are making the trip. There are people travelling from America, Canada, Ireland, Sweden, Germany, Spain, Portugal, Norway, Japan and Australia – which gives you some idea of the scale of the event.

I’m quite happy to take a back seat on this one. I was instrumental in planning international events in 1992 and 1995, when I was much younger and had considerably more energy!

Mounjaro update.  I do feel that, at long last, I’m starting to experience some appetite suppression and a reduction in food noise from my current dose of Mounjaro. A 10mg pen should be delivered within a few days of my return.

I’m not bothering to take my medication with me this time. As we’re staying in different hotels, it just feels like too much hassle, and I’d worry about leaving the pen somewhere. Instead, I’m taking my usual Friday dose one day later, on Saturday, and will then take my next dose on the Sunday after we return. Hopefully that will see me through the week and limit the damage when it comes to food! I’m certainly not planning to spend my holiday worrying about every mouthful, but I will remain mindful as I don’t want to undo all the hard work I’ve put into maintaining my weight.

Anyway, that’s my quick update from Scandinavia. I’ll share some of the details of my trip on my return – assuming, of course, that I survive the life-admin avalanche waiting for me!

(PS. In my eagerness to be super-organised, I realised today I’d scheduled the blog post for the wrong date! So here it is anyway 5 days later than planned!)

In the meantime, here’s my weight report…

Weight this week: 55kg (8 stone 9¼lbs)
Weight last week: 55.60kg (8 stone 10½)

Weekly loss/gain: -0.5kg (-1lb)
100% – 6 months 26 days in weight maintenance range (54 – 57kg or 8st 7lb – 8st 13lbs)

I’m really pleased with that loss ahead of my time away, and I’m also liking the downward trajectory of my weight graph, back towards the middle of my maintenance range.

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Duck, Downpours & a Dose of Mounjaro

This week has been fairly calm, with a few social activities thrown in, which is always nice and breaks the week up a little.

On Wednesday, my sister was here to work for me and, as part of her plan, we were going to do one of our community litter picks, which I organise (date, invitation sent, provide all the gear and collection bags).

When we were due to leave at 10.45 am, it was pouring with rain. As I hadn’t had an email from anyone confirming they were going to be there, I decided the coffee machine looked considerably more appealing and made myself a coffee instead.

Then there was a knock at the door.

It was a neighbour asking whether the litter pick was on. I explained my decision, and he told me he’d just come from the meeting place and that no one else was waiting there. That seemed to confirm I’d made the right call, so I went back to enjoying my coffee.

Then my phone rang.

It was somebody at our meeting place asking where I was and telling me that there were three other people waiting there with her!

Oops!

I polished off my coffee rather swiftly, and we rushed up the road. By then the rain had blown over, and it turned into a really nice event, with about five of us collecting litter and then seven or eight of us having coffee together in one of the cafés at the shopping parade afterwards.

I always really enjoy these events. It’s lovely to have the opportunity to meet neighbours, have a chat and find out a little bit more about them.

On Thursday evening, I’d organised a social gathering for my fellow trustees at the organisation I’m a trustee for. You’re probably beginning to spot a pattern here – I’m the organiser! 😂

We went back to the Rising Sun, a venue we’d used for a meeting in January, and enjoyed a really lovely meal. There were just six of us this time, which gave us another chance to chat and get to know one another a little better.

The food was really nice – and you know that, coming from me, it must have been above par! 😂 I chose pan-fried duck breast with a citrus sauce, dauphinoise potatoes, green beans and carrots, and it was delicious.

I even managed to swerve the dessert menu, opting instead for a floater coffee, which went down very well. I did, however, have a bottle of 4% fruit cider with my meal. It’s all about balance!

I wheeled into town in my wheelchair but, now that the evenings are beginning to draw in, Mike very kindly came and collected me afterwards.

I’m feeling rather bereft now because both of my sisters have disappeared off on their holidays. My younger sister (the one who helps me at home) has gone off to China for three weeks. That feels like an eternity!

My middle sister, meanwhile, is in Cornwall for two weeks, climbing with her husband -something they both really enjoy and do on a regular basis. She had knee replacement surgery in June, so this trip is a real test of endurance and whether she’s still got what it takes to climb up cliff faces;

Rather her than me!

Judging by the photographs she’s been sending, though, she’s doing all right.

Saturday brought yet another social occasion: our local neighbourhood summer picnic, held just across the road from where I live, on the university grounds.

Everyone takes along food to share, and we spend the afternoon having a natter and catching up with neighbours. Then, as tradition dictates, we have our annual game of rounders – odds versus evens.  I made some really simple cheese and tomato pinwheels, using shop-bought ready-rolled puff pastry, tomato pesto, herbs, grated Mozzarella, Cheddar, and Parmesan.

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I did manage to limit myself to a single bite of homemade carrot cake (my absolute favourite!).

Each year, as the neighbours get older, this gets funnier.  Most are in their 70s and 80s – but we do have a few younger newcomers, which is just as well.

This year, some of our more elderly players were allowed to use a runner – otherwise known as their grandchildren. 😂 The neighbour has an attempt at hitting the ball (often they miss!) and then their grandchild sprints off around the posts on their behalf.

I have absolutely no idea what the final score was, but that really doesn’t matter. It’s always great fun.

We’ve enjoyed some lovely sunshine this weekend, and I’ve been making the most of it, as I believe the weather is about to turn a little colder.

Something else has also been keeping me rather busy over the past 48 hours. Somebody reading this post will know exactly what I’m referring to here, but I’m planning to keep that a secret for now…  All will be revealed in due course… 😉

Okay, on to Mounjaro and my progress update.

I took my third 7.5 mg injection of Mounjaro on Friday and, finally, I appear to be experiencing some appetite suppression and a reduction in food noise.  Hurrah!

Its effects are still not as strong as they were when I was taking this dose originally, but we’re well on the way to getting there.

In the meantime, here’s my weight report…

Weight this week: 55.60kg (8st 10.6lbs)
Weight last week: 55.85kg (8st 11.2lbs)

Weekly loss/gain: -0.25kg (-½lb)
100% – 6 months 26 days in weight maintenance range (54 – 57kg or 8st 7lb – 8st 13lbs)